|About the Book|
Jenifer Estess is a woman on the verge: Shes about to launch her own company- shes looking buff and dating vigorously- shes driving in the fast lane -- with the top down. At the age of thirty-five, Jenifer dreams of falling in love and starting aMoreJenifer Estess is a woman on the verge: Shes about to launch her own company- shes looking buff and dating vigorously- shes driving in the fast lane -- with the top down. At the age of thirty-five, Jenifer dreams of falling in love and starting a family. Then she notices muscle twitches in her legs. Walking down a city block feels exhausting. At first, doctors write off Jenifers symptoms to stress, but she is quickly diagnosed with ALS, a fatal brain disease that is absolutely untreatable.Max out your credit cards and see Paris, suggests one doctor. Instead of preparing to die, Jenifer gets busy. She dreams deeper, works harder, and loves endlessly. For Jenifer, being fatally ill is not about letting go. Its about holding on and reaching -- for family, friends, goals.Jenifers girlhood pact with her sisters Valerie and Meredith -- nothing will ever break us apart -- guides them as Jenifer faces down one of the most devastating illnesses known to humankind. That same enduring pact inspires the creation of Project A.L.S., a movement started by the sisters that changes the way science and medicine approach research for ALS and the related diseases Parkinsons and Alzheimers, and which has already raised more than $18 million. Will Project A.L.S. help scientists discover medicine in time for her?Jenifer answers these questions and others in this beautifully written and wholly inspiring memoir that celebrates a life fuelled by memory. Tales from the Bed forces us to reconsider societys notion of having it all, and illustrates, more than anything, the importance of endurance, hope, and, most of all, love.